Webinars

Disease-Specific
Neuro­reha­bilitation
Advanced Therapies
Paediatric
Clinical Studies
Deep Brain Stimulation

ERN-RND webinars in collaboration with ERN EURO-NMD and EAN

ERN-RND provides free educational webinars on rare neurological and neuromuscular diseases - in collaboration with the European Reference Network for Rare Neuromuscular Diseases (EURO-NMD) and the European Academy of Neurology (EAN). The goal is to share knowledge on rare neurological, movement and neuromuscular disorders via a series of webinars presented by expert members of both networks.

Topics: The webinars will treat topics related to the disease groups covered by the two networks and alternate between adult and paediatric contents. Various aspects from more general  clinical features, examination, disease diagnosis, medical interventions and disease management to more specific ones as use of scales or imaging will be discussed.

Audience: clinical specialists (neurologists and paediatric neurologists), residents and other paramedical staff involved in the care of neurological patients.

Recorded webinars:  The webinars are usually recorded and published on the "past webinars" webpage 2 weeks approximately after it took place. However, please consider that in the recorded webinar some features are missing and thus the live experience of these educational events is highly recommended.

Registration: In order to register for a specific webinar click on the webinar of your choice in the table below. The registration links will be active as soon as possible and at the latest 2 weeks before the webinar's date.

Next webinar organised by ERN-RND will be on:

10 September 2024: ‘Family Experiences with Huntington's Disease: Insights and Comparisons with other Neurological and Neuropsychiatric Disorders’ by Siri Kjølaas, Oslo University Hospital, Centre for rare disorders, Oslo,Norway

 

Date Topic Speaker Institution ERN Focus
03 September 2024, 4 - 5 pm CEST The ERN EURO-NMD Registry Hub Project Nawel Lalout & Dagmar Wandrei Radboud University Medical Center (NL), Medical Center – University of Freiburg (DE) EURO-NMD
10 September 2024, 3 - 4 pm CEST Family Experiences with Huntington's Disease: Insights and Comparisons with other Neurological and Neuropsychiatric Disorders Siri Kjølaas Oslo University Hospital, Centre for rare disorders, Oslo,Norway ERN-RND
12 September 2024, 4 - 5 pm CEST Therapies for Inherited Optic Neuropathies – an Update Patrick Yu-Wai-Man Cambridge Centre for Brain Repair, Department of Clinical Neurosciences, and MRC Mitochondrial Biology Unit, University of Cambridge, UK EURO-NMD
17 September 2024, 3 - 4 pm CEST The Role of Dopamine in the Pathophysiology of the Allan-Herndon-Dudley Syndrome/MCT8 Deficiency Nina Wilpert Charité, Berlin, Germany ERN-RND
24 September 2024, 3 - 4 pm CEST Clinical Neurophysiology in Dystonia Anke Snijders Radboud University Medical Center, Netherlands ERN-RND
03 October 2024, 4 - 5 pm CEST Presentation of the New Guidelines on ALS management Philip Van Damme UZ Leuven, Belgium EURO-NMD
10 October 2024, 4 - 5 pm CEST Update on ALS Approved Therapies Andrea Calvo AOU Torino, Italy EURO-NMD
17 October 2024, 4 - 5 pm CEST Management of Relationships and Sexuality in ALS Patients Rachael Marsden Oxford University Hospitals, UK EURO-NMD
22 October 2024, 3 - 4 pm CEST Neurogeriatric Aspects and Neurological Aspects in Palliative Care of MSA, PSP and Advanced PD Martin Klietz Hannover Medical School, Germany ERN-RND
24 October 2024, 4 - 5 pm CEST Novel Treatments in Hereditary Neuropathies Peric Stojan Department for Neuromuscular Disorders of the Neurology Clinic, University Clinical Center of Serbia EURO-NMD
05 November 2024, 3 - 4 pm CET Diagnostic Approach to Childhood-onset Chorea Juan Darío Ortigoza-Escobar Hospital Sant Joan de Déu, Barcelona, Spain ERN-RND
14 November 2024, 4 - 5 pm CET DBS in Dystonia - the network perspective Juho Joutsa Turku University Hospital ERN-RND
19 November 2024, 3 - 4 pm CET Autonomic Dysfunction in Movement Disorders Pietro Guaraldi Azienda USL di Bologna, IRCCS Institute of Neurological Sciences, Bologna, Italy ERN-RND
26 November 2024, 3 - 5 4 pm CET Differential Diagnosis aside from Neuroimaging for non-Leukodystrophy White Matter diseases Nicole Wolf Amsterdam Leukodystrophy Center, VUMC, Netherlands ERN-RND

Webinars from partner professional organisations

Webinars from other organisations

All past webinars of ERN-RND partner organisations (including patient organisations) can be found here.

Please note that ERN-RND is not responsible for the content provided via external links and has no control over them.